KEYC

By Michael McShane

Minnesota Senator Amy Klobuchar will be holding a virtual press conference today to bring more attention to Americans living with rare diseases.

Senator Klobuchar is the co-chair of the bipartisan Rare Disease Congressional Caucus.

She will be joined by Abbey Hauser, a rare disease advocate who lives with Classical Ehlers-Danlos Syndrome. Representatives from Mayo Clinic and Every-Life Foundation for Rare Diseases will also be involved in the conference.

There are over 10 thousand known rare diseases affecting 30 million Americans. Currently, fewer than 5 percent of rare diseases have a treatment approved by the U.S. Food and Drug Administration.